Prader-Willi Syndrome Supports

For those who have Prader-Willi Syndrome (PWS), community homes meet their highly specialized needs. People with this rare genetic disorder have a chronic feeling of hunger that can lead to excessive overeating and life-threatening obesity. Following training and consultation from The Children’s Institute of Pittsburgh, we provide careful meal planning and 24-hour care to support these men and women as they learn to manage their lifelong needs and enjoy independent, full lives in the community.

Mainstay Life Services operates three of the only community homes in western Pennsylvania for people with PWS. Two homes for men; the third is specifically for women.

We focus on managing lifelong needs for people with PWS. We have learned from experience that there are a variety of things that can be done to improve at-home care for those with this syndrome. Safety modifications, meal planning, regular exercise and other modifications can be made based on individual needs to create a safe and healthy atmosphere for growth.

With careful planning and 24-hour supervision, persons with PWS are able to live independent lives in the community and enjoy the many activities of a full life.

For More Information
To learn more about our Prader-Willi services, please contact David Cochran, Director of Residential Operations, at 412.344.3640.

View the Prader-Willi services postcard.

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April’s Story

For April, the unique needs that are a part of dealing with Prader-Willi Syndrome are best understood by the other women who live with her in a Mainstay home and her dedicated staff. Prader-Willi results from a chromosomal issue that causes an insatiable hunger and aberrant behavior that require constant supervision and ongoing lifelong interventions.

Her roommates and the staff at Mainstay helped April adjust to her move here from Philadelphia in 2008. Today, April attends a day program, enjoys doing household chores, and learning new things. She has made friends by joining a bowling league, a theater group, and going to various dances and other social activities.

April’s witty sense of humor and charming personality, coupled with the structure of her Mainstay home, have helped her adjust and enjoy an extended family that cares for her each and every day.